DiaBetter Together
This randomized controlled trial is funded by NIH/NIDDK (1R01 DK119246, PI: Hilliard) and aims to evaluate the efficacy of a strengths-based, supportive behavioral intervention for young adults with type 1 diabetes as they transition from pediatric to adult diabetes care, compared to usual care. The behavioral intervention is delivered by Peer Mentors, older young adults with T1D who have successfully established care in an adult setting, trained by the research team.
Posters and Publications
- Health Behaviors & Psychosocial Functioning in Diverse Young Adults with Type 1 Diabetes (T1D) During the Pandemic
- Young adults with type 1 diabetes (T1D)’s perceived impact of COVID-19 pandemic on their lives and caution about health
- Type 1 Diabetes (T1D) Management and Worries about Health during the COVID-19 Pandemic- Challenges Across Insurance Types
- Reimagining Trial Recruitment, Procedures, & Intervention Protocol for Young Adults with Type 1 Diabetes (T1D) Transitioning to Adult Care
Promoting Resilience in Stress Management (PRISM)
This multi-site randomized controlled trial is funded by NIH/NIDDK (1R01 DK121224, PI: Yi-Frazier; Site PI: Hilliard) and aims to test the efficacy of the PRISM intervention in teens with type 1 diabetes who have elevated diabetes-related distress, compared to usual care. PRISM has been piloted in other pediatric conditions and aims to help adolescents learn and use “resilience resources” to overcome challenges related to living with a complex medical condition.
Type 1 Doing Well
This pilot study is funded by the National Institutes of Health (NIH)/National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) (1R21 DK107951, PI: Hilliard) and aims to develop and pilot test a new, strengths-based mobile health (mHealth) smartphone app for parents of adolescents with type 1 diabetes. The app is designed to help parents recognize and reinforce what their adolescents do well for diabetes care, compared to usual diabetes care without the app.
Posters and Publications
Diabetes Quality of Life Study
This study is funded by the Leona M. and Harry B. Helmsley Charitable Trust (2015PG-T1D0184, PIs: Hilliard, Anderson) and aims to (1) learn about the experiences of people with diabetes and their families that contribute to their health-related quality of life, and (2) develop and validate a series of new assessment instruments to measure diabetes-specific health-related quality of life in people with diabetes and in their parents or partners, from early childhood to late adulthood.
Posters and Publications
- Caring for Someone with Type 1 Diabetes: Health-Related Quality of Life of Parents and Partners
- Characterizing Worries in Parents of Youth with Type 1 Diabetes
- Diabetes Disclosure and Support Seeking Styles in Adolescents and Young Adults with Type 1 Diabetes
- Developmental Shifts in Worries about Life with Type 1 Diabetes (T1D) from Childhood through Young Adulthood
- Food and Eating Behaviors among Adolescents with Type 1 Diabetes and their Parents
- Life with Type 1 Diabetes (T1D) Outside Clinic: Connecting Online, In Person, and through Diabetes Organizations
- Living with Type 1 Diabetes: A New Approach to Assessing Diabetes-Specific Health-Related Quality of Life in Youth
- Money Talks: Financial Aspects of Type 1 Diabetes and Parental Quality of Life
- Pediatric Type 1 Diabetes and Family Quality of Life: The Role of Siblings
- The "Helping Dilemma": Experiences of Parents and Partners of People with Type 1 Diabetes (T1D) Across the Lifespan
- What is Health-Related Quality of Life? Perspectives from Diabetes Care Providers
- Youth and Parent Feelings about Type 1 Diabetes (T1D) Management Technologies
- What’s Working in Pediatric Type 1 Diabetes Provider-Family Relationships?
- Diabetes and Sleep: Qualitative Perspectives from People with Type 1 Diabetes and Their Parents and Partners
- How Children, Adolescents, and Young Adults with Type 1 Diabetes (T1D) Cope with Diabetes-Related Worries
- Everything is so expensive" Financial Experiences of Adults with Type 1 Diabetes (T1D)
First STEPS
This multi-site randomized controlled trial is funded by NIH/NIDDK (1R01 DK102561, PI: Streisand; Site PI: Hilliard) and aims to evaluate a stepped care behavioral intervention to support parents of young children under age seven newly diagnosed with type 1 diabetes, compared to usual diabetes care.
Posters and Publications
- Resilience in Real Time: Parents of Youth with Type 1 Diabetes (T1D) Summer 2020 Psychosocial Experience
- Involving Parents of Young Children in Designing and Delivering a Supportive Intervention at New Diagnosis of Type 1 Diabetes
- Early CGM use and mealtime behavior in parents of young children recently diagnosed with type 1 diabetes (T1D)
- Up All Night? Sleep in Parents of Young Children Newly Diagnosed with Type 1 Diabetes
- Sleepless in the Pandemic? Sleep in Parents with Children with Type 1 Diabetes (T1D)
- Sleep Changes in Parents with Children with Type 1 Diabetes (T1D) During the COVID-19
Pandemic
Strategies to Enhance New CGM Use in Early childhood (SENCE)
This multi-site randomized controlled trial is funded by the Leona M. and Harry B. Helmsley Charitable Trust (2016PG-T1D011, PI: DiMeglio; Site PIs: Hilliard, DeSalvo) and aims to (1) learn about the experiences of parents of young children under age eight using advanced diabetes management technologies, and (2) compare the efficacy of continuous glucose monitoring (CGM), CGM with a newly developed behavioral intervention to support effective CGM use, and usual care without CGM in young children with type 1 diabetes.
Posters and Publications
Diabetes Strengths Study
This pilot study was funded by Texas Children’s Hospital Pediatric Pilot Research Fund (PI: M Hilliard) and Caroline Weiss Law Fund for Research in Molecular Medicine (PI: M Hilliard) to develop and pilot test a new behavioral intervention that builds on teens’ positive diabetes-related behaviors and attitudes. Using teen and parent-reported information about the teens’ strengths, diabetes care providers delivered this brief behavior intervention as part of routine medical care visits.
Posters and Publications
- Diabetes Strengths Profiles: A Characterization of What is Going Well for Adolescents with Type 1 Diabetes (T1D)
- Diabetes Strengths Study: Pilot, Feasibility, & Preliminary Results of a Brief, Strengths-Based, Provider-Delivered Intervention for Teens with Type 1 Diabetes (T1D)
- Lessons from a Pilot Strengths-Based Intervention Delivered in Outpatient Diabetes Care
Resilience and Diabetes Outcomes (RODEO)
This study was funded by NIH/NIDDK (1K12 DK097696, PI: Anderson; Project PI: Hilliard) and aimed to (1) learn about the strengths and everyday diabetes management experiences of pre-adolescents and young adults with type 1 diabetes leading to resilient diabetes outcomes, and (2) develop and validate new assessment instruments to measure diabetes-specific strengths in these age groups.
Posters and Publications
- Defining Features of Diabetes Resilience in Young Adults with Type 1 Diabetes
- Diabetes Resilience: Psychometric Properties of a Measure for Pre-Adolescents with Type 1 Diabetes
- Psychometric Properties of a Diabetes Resilience Measure for Adolescents
- Youth at Risk for Type 1 Diabetes (T1D) Disparities: Diabetes Distress and Glycemic Control
- Type 1 Diabetes Strengths in Tweens: Similarities and Differences across Clinical and Demographic Groups
- Deconstructing Diabetes Strengths: Factor Analysis of the Diabetes Strengths and Resilience Measure for Young Adults (DSTAR-YA)
Getting Ready for Emerging Adulthood and Transition (GREAT)
This pilot program in diabetes clinic (Co-leads: Hilliard, Lyons) has been developed to help adolescents with type 1 diabetes and their parents prepare for the transition from adolescence to adulthood and the transfer of healthcare from the pediatric setting to the adult setting. This is part of the Texas Children's Hospital Diabetes “Type 1 Transitions” Program.
Posters and Publications
