Jill Oliver Robinson, M.A.
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Positions
- Research Manager - ELSI Research Program
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Center for Medical Ethics and Health Policy
Baylor College of Medicine
Houston, TX US
Education
- M.A. from University of Houston
- 12/2009 - Houston, Texas United States
- Sociology
- B.A. from University of Houston
- 12/2006 - Houston, Texas United States
- Major, Sociology, Minor, Political Science
Professional Interests
- Ethical, legal, and social implications of genomics and human genetics
Selected Publications
- Lupo PL, Robinson JO, Diamond PM, Jamal L, Danysh KD, Blumenthal-Barby J, Vassy JL, Lehmann LS, Green RC, McGuire AL "Patients’ perceived utility of whole-genome sequencing for their healthcare: Findings from the MedSeq Project." Per Med. 2016;13(1):13-20.
- Vassy JL, Christensen KD, Slashinski MJ, Lautenbach DM, Raghavan S, Robinson JO, Blumenthal-Barby J, Feuerman LZ, Lehmann LS, Murray MF, Green RC, McGuire AL "“Someday it will be the norm”: Physician perspectives on the utility of genome sequencing for patient care." Per Med. 2015;12(1):23-32. Pubmed PMID: 25642274
- Christensen KD, Vassy JL, Jamal L, Lehmann LS, Slashinski MJ, Perry DL, Robinson JO, Blumenthal-Barby J, Feuerman LZ, Murray MF, Green RC, McGuire AL "Are physicians prepared for whole genome sequencing? A qualitative analysis." Clin Genet. 2015; Pubmed PMID: 26080898
- Robinson JO, Slashinski MJ, Chiao E, McGuire AL "It depends whose data are being shared: Considerations for genomic data sharing policies." J Law Biosciences. 2015;
- Burstein MD, Robinson JO, Hilsenbeck SG, McGuire AL, Lau CC "Parental consent for pediatric data sharing." Pediatrics. 2014;133(4):690-697. Pubmed PMID: 24616359
- Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL "Participants’ recall and understanding of genomic research and large-scale data sharing." J Empir Res Hum Res Ethics. 2013;8(4):42-52. Pubmed PMID: 24169421
- Oliver JM, Slashinski MJ, Wang T, Kelly PA, Hilsenbeck SG, McGuire AL "Balancing the risks and benefits of genomic data sharing: Genome research participants’ perspectives." Public Health Genomics. 2012;15(2):106-114. Pubmed PMID: 22213783
- McGuire AL, Oliver JM, Slashinski MJ, Graves JL, Wang T, Kelly PA, Fisher W, Lau CC, Goss J, Okcu M, Treadwell-Deering D, Goldman AM, Noebels JL, Hilsenbeck SG "To share or not to share: A randomized trial of consent for data sharing in genome research." Genet Med. 2011;13(11):948-955. Pubmed PMID: 21785360
- Ramoni RB, McGuire AL, Robinson JO, Morley DS, Plon SE, Joffe S "Experiences and attitudes of genome investigators regarding return of individual genetic test results." Genet Med. 2013;15(11):882-887. Pubmed PMID: 23639901
- McGuire AL, Robinson JO, Ramoni RB, Morley DS, Joffe S, Plon SE "Returning genetic research results: Study type matters." Per Med. 2013;10(1):27-34. Pubmed PMID: 24077424
- Oliver JM, McGuire AL "Exploring the ELSI universe: Critical issues in the evolution of human genomic research." Genome Med. 2011;3(6):38. Pubmed PMID: 21699745
- Pereira S, Robinson JO, McGuire AL "Return of individual genomic research results: What do consent forms tell participants?." Eur J Hum Genet. 2016;24(11):1524-1529. Pubmed PMID: 27329739
- Robinson JO, Carroll T, Feuerman LZ, Perry DL, Hoffman-Andrews L, Walsh RC, Green RC, McGuire AL "Participant and study decliners’ perspectives about the risks of participating in a clinical trial of whole genome sequencing." J Empir Res Hum Res Ethics. 2016;11(1):21-30. Pubmed PMID: 26928896
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